NIA has established the National Institute on Aging Genetics of Alzheimer's Disease Data Storage Site (NIAGADS) as a national genetics data repository in order to facilitate access by qualified investigators to genotypic data for the study of the genetics of late-onset Alzheimer's disease. It is the policy of the NIA that all Genetic Data derived from NIA funded studies for the genetics of late-onset Alzheimer's disease be deposited at NIAGADS or another NIA approved site or both whenever possible. Such Genetic Data shall be made available as soon as possible, but no later than upon acceptance of a subset of data for publication or public disclosure of a submitted patent application, whichever is earlier. For example, after publication of preliminary reports of the work, a subset of phenotypic data and Genetic Data is to be shared with other investigators for secondary analysis. Generally, this will be a subset of data, or data that are made public and will not typically include the full range of Associated Phenotypic Data being collected in genetic studies. NIAGADS along with other NIA approved sites will make these Genetic Data and Associated Phenotypic Data available to qualified investigators in the scientific community for secondary analysis in accordance with standards established by the NIA.
The National Institutes of Health (NIH) advocates are making available to the public the results and accomplishments of the activities that it funds. NIH assures that research resources developed with public funds become readily available to the broader research community in a timely manner for further research, development, application, and secondary data analysis in the expectation that this will lead to products and knowledge of benefit to the public health. Resources expected to be shared include data and biological materials collected and pertinent methods of analysis. The National Institute on Aging (NIA) supports the NIH policy that whenever possible research resources be made available to qualified investigators. Compliance with these policies is an important requirement of an NIH award.
NIAGADS is supported by an NIH/NIA collaborative agreement (U24-AG041689).