Alzheimer's Disease and Related Dementias (ADRD)
Effective May 1, 2017, NIH will begin permitting access to data with an “Alzheimer’s disease only” data use limitation if the data access request includes research on Alzheimer’s disease or the ADRDs delineated above. Updating the definition of Alzheimer's disease used to establish data-sharing criteria will allow advancement of research on dementia-causing disease processes that are commonly embedded in and/or are difficult to distinguish from AD during life. This clarification will allow approved users of Alzheimer's disease genomic data to pursue research that is fully congruent with the NAPA definition and the current state of the science in the field. Please see the following for additional information: NIH NOT-AG-17-007.html.