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Usage Rules

ADSP Usage Rules

There is no embargo on the use of ADSP data. Sequence data are available by application to the Database for Genotypes and Phenotypes (dbGaP) through http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000572.v7.p4 or through the NIA Genetics of Alzheimer's Disease Data Storage Site (NIAGADS), which is the Data Coordinating Center for the ADSP. Instructions are found on the NIAGADS ADSP website. Please contact NIAGADS staff at niagads@upenn.edu for assistance with this process. ADSP genomic and phenotypic data are made available rapidly after generation and completion of quality control checking. Please see NOT-AG-16-033 Notice of Information: The Alzheimer's Disease Sequencing Project Policy (ADSP) on the Publication of Study-Related Data for details.

ADSP Data Use Certification (PDF)

Restrictions on data use are as follows:

The National Institutes of Health (NIH) advocates making available to the public the results and accomplishments of the activities that it funds. NIH assures that research resources developed with public funds become readily available to the broader research community in a timely manner for further research, development, application, and secondary data analysis in the expectation that this will lead to products and knowledge of benefit to the public health. The Alzheimer’s Disease Sequencing Project follows the NIH policy that whenever possible research resources be made available to qualified investigators. Please refer to the following documents on data use and data sharing.

NIAGADS Data Distribution Agreement for ADSP (PDF)
NIA Sharing Policy/NIA AD Genetics sharing plan (WORD)
NIAGADS Code of Conduct (PDF)
NIAGADS Frequently Asked Questions (FAQ) (PDF)

Acknowledgement Statement for the ADSP

Sample Language of Data Return to NIAGADS (WORD)

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